As a college student at the University of Mount Union in Alliance, Ohio, Megan McMinn studied biology, hoping to one day become a physician’s assistant.
But a desire to interact even more with patients led her down a different path in genetic counseling.
“What genetic counseling gave me was a good split between patient care and the hard science research end of things,” McMinn said.
At Geisinger Health System in Danville, Pa., McMinn sees about six patients a day, working in oncology. Soon, she’ll move onto a cardiology clinic, helping to identify genetic risks for individuals and potentially their families. The system currently has 25 genetic counselors on staff, but anticipates needing hundreds more as genetic testing becomes cheaper and more accessible.
The trend extends far beyond Geisinger, as the field has grown dramatically in the past decade, touching all aspects of health-care as medicine becomes more personalized.
“Genetics permeates everything—there won’t be enough genetic counselors to see every patient who gets genetic information,” said Mary Freivogel, president of the National Society of Genetic Counselors (NSGC).
As a result, the Bureau of Labor Statistics projects the occupation will grow by 29 percent through 2024, faster than the average for all occupations
“I think [a genetic counselor] will become a key member of the team, discussing with patients and families what to do next, how to figure out how the genome is going to interact with your lifestyle and make decisions about what you want to do medically,” said Dr. David Feinberg, president and CEO of Geisinger Health System.
Genetic counselors typically receive a bachelor’s degree in biology, social science or a related field, and then go on to receive specialized training. Master’s degrees in genetic counseling are offered by programs accredited by the Accreditation Council for Genetic Counseling, offered at some 30 schools in the U.S. and Canada, according to the NSGC.
Those who want to be certified as genetic counselors must obtain a master’s degree from an accredited program, but do not need to be doctors.
The NSGC is also working to recruit new talent by doing outreach in middle and high schools to let younger students know the field is an option in the future. Pay is competitive as well—on average, counselors make around $80,000 a year, but that can increase up to $250,000 annually depending on specialty, location and expertise, Freivogel said.
Health insurance often pays for genetic counseling, and for genetic testing when recommended by a counselor or doctor. However, it’s important to check with insurers before scheduling any tests as coverage levels vary. Cost also varies greatly, for example, as multi-gene cancer panels can range from $300 to $4,000 depending on the type of test, the lab used and whether the patient goes through his or her insurance or pays out of pocket.
And while at-home tests like 23andMe are typically less expensive, those taking them still need to see a genetic counselor to explain their results.
Part of the reason more counselors will be needed in the future at Geisinger is because the health system is home to the MyCode Community Health Initiative, one of the largest biobanks of human DNA samples of its kind, according to Amy Sturm, director of Cardiovascular Genomic Counseling at Geisinger. The project has consent from more than 150,000 patients to participate in having their entire DNA code sequenced and synced with their electronic medical records, to look for new causes of disease and different ways to treat conditions.
“We are figuring out and researching the best way to deliver this information back to our patients and also back to families with the ultimate goal of preventing disease and improving the healthcare system,” Sturm said.
Keeping up with the latest in genomics, where new developments happen almost daily, can be a challenge. Yet counselors like McMinn say the ability to impact more than just the patient by studying the genome makes the job well worth it.
“We are able to bring to the forefront the fact that we’re not just taking care of the patient, but we’re taking care of the entire family,” McMinn said.